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Friday 12 April 2013

Result Of Test = Another Problem To The List . .

Had another test today to see how my adrenal glands responded to a medication given to help stimulate them. I didn't show much response so now I have been put on another medication for the near future. I have an Adrenal Insufficiency which could be the answer as to why I couldn't maintain my blood sugars. We don't know anything about the condition as of yet but mummy has been given some information to read up on so hopefully it won't be too complicated.

Today is another day my pain is up. I've had oramorph again but it's had no effect on top of all my other stuff. I've not been happy at all this morning and was crying quite a bit, I don't know what I wanted or where I wanted to be. I'm sat in bed watching tv at the minute whilst mummy is looking as some new vests for me which are very expensive. Despite being very restless, tossing and turning most of the night I slept until 8.15 this morning. My weight is up quite a bit today and my face is slightly puffy too. I have to do another urine test tomorrow to make sure the infection I had 7 days ago has cleared up now. The type of infection I had is quite difficult to get rid of despite the antibiotic I was on.

We've not had confirmation of the day my story will go out on tv but its either today or Monday so mummy said we're going to watch it just in case it's on. I've also had my photo taken again today for another story the communications team here in sheffield are going to do. They are going to share the story nationally to various places online. Mel is coming back later on to show us what she has written and the story she has wrote. It's all exciting stuff at the minute. Hopefully it'll all help and potentially come across somebody who could be like me or may know a way of treating my problems.

8 comments:

  1. Hi Harvey not heard much from you this afternoon 😞Chloe says hi, and says you are like her with the adrenal glands!!!!

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  2. Fingers crossed hey! I'll be watching tonight just in case. Can't wait to see you both. Its raining hard ouside now, going food shopping which I hate. Much enjoyed shopping for allsorts and lemon meringue donuts last week. Love Adele xx

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  3. xxx what channel is his story on Lian?

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  4. Just seen the Granada news thing about your son, just want to say do not despair, our youngest son did not speak a single word until he was nearly 5, we spent years going around all the specialists and hospitals who told us he would always be a special needs child and would have to have care all his life, but in the space of one week he started to talk clearly and dumbfounded all the so called 'experts', be strong and positive and all will be well, good luck

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    1. We will never give up and will always live in hope for Harvey. That's great about your son. It's crazy and so interesting hearing things like that. Thank you for your comment, wishing you all the best with your son

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  5. Your very brave boy harvey and I know that everybody is wishing that you'll get better very soon, my family and me send all their love and best wishes. Keep fighting eh
    Love chris xxx

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  6. Hi there has Harvey had a Biopsy and been tested for Wegeners?

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    1. Hi, Harvey has had biopsies for all different syndromes/diseases which have all come back negative. I have just googled wegeners as well but Harvey doesn't carry any of those symptoms. Thank you for your comment

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