Well, it's been almost a month to the day when I was discharged and things have been good. Think a few people thought I'd of ended up back in hospital with minor blips but no, nothing. Even the prof was surprised at how well I am doing and on my first appointment was happy go 2 weeks until he wanted to see me again which will be this Thursday coming. A few of my blood results from last week were slipping but we've not had to make any changes to my cares or TPN so see what my bloods this week show.
Since discharge I've been full of smiles, giggles and cheekiness. People only have to look at me or walk into the living room and I'm in full belly chuckle laughter! It's been great being back home, I think the time felt right for me.
I've had a few off days, but hay, that's going to happen right?! Past couple of days my pain has been up, and on Saturday I was bleeding from my stomach. I've also got a nasty cough which Is causing me to retch. I've needed oxygen a couple of times intermittently in the day because my breathing rate when up and I was working a bit harder to breath. This settled after a few hours and I was able to have a few hours without oxygen.
In the month I've been home it's been spent mainly taking it easy and resting but in between we've been to Trafford centre where I rode the carousel, Stockport for shopping and costa (quite a number of times), tesco's (far too much!!), the pub for tea and breakfast once too, Buxton park, cinema to watch monsters university, Sheffield twice weekly to take bloods and pick up medication, visited my M2 family and friends, and went for a ride to Krispy Kreme with my dad and sisters yesterday. I've probably done more but just can't remember it all!
My sleep hasn't been too bad recently, the first week I was waking early hours but after more sleep meds I managed another few hours. I've needed it a couple of times since but not much. The first week of being home was spent sorting out, putting things in place and getting used to being home. It didn't take long because now it just feels like we've never been away.
I do miss my extended family, quite alot actually and even mummy said its not the same not being around them but at least I still get to visit them and take them cakes :). I love them all loads and can't thank them enough for everything they did for me, and my mummy during our stay. They weren't just nurses, they became our friends and without them well, who knows what position we'd be in. Love you all millions xxxx
I guess it's time I got to bed before mummy starts telling me off!! I've added a few photos of home life - 1 month on . .